Mara Elidi

This is a first trimester birth story, the story of my fourth child.
I give this as both an opening and a caution, because parts of this story may trigger anxiety especially for those who are currently pregnant or have experienced miscarriage at home. There are also physically graphic parts to this story to describe the events following my miscarriage.

On May 1st, after 9 months of trying to conceive, a little help from letrozole, and a cross-country move... we learned I was pregnant.
That day and the weeks that followed were full of anxiety but also of intentional faith and thankfulness. Nausea, headaches, tenderness, fatigue, and emotional instability all made me so happy to feel. Knowing I feared attaching to this baby, I attached anyway. We took advantage of BabiesRUs going out of business and bought a bassinet and swing. We were requesting Ryan be placed in follow on courses so I could deliver here before we move again. We were speaking like we would bring a living baby home in January. It was pure joy every time we saw a heartbeat on the sonogram screen. 

Today, it has been one whole month since her birthday. Since we held her and kissed her and smelled her. I was 13 weeks pregnant when I had her at home. 

At 12 weeks 5 days (and the day after the 3rd anniversary of Eden's funeral), I went to the ER. I was having abdominal and back pain with little relief and felt something was not right. I told my husband he didn't need to come, because I had hoped I was just being worried. Pregnancy after loss after loss after loss can make someone feel like they've gone insane with worry and assumption that they are no longer carrying life.
He went to work, and I headed to the hospital. They'd seen me there four times already, for pneumonia once and three times for fear that something was wrong. This time, something was. 

A quick note about my experience in the ER this time- it was terrible. It was cold, cruel, and rude. No one would speak to me during the ultrasound. They all spoke over me and addressed each other without answering my questions or requests to see my baby. I knew, and no one would tell me. There was time between the scan and the nurse practitioner coming in for me to call and tell Ryan he needed to be there, for him to drive all the way from post to downtown, park, and come in to calm me down. I still held hope that I was being silly, because surely someone would have come in by then. The nurse practitioner smelled like cigarettes, because she took a smoke break and discharged me before she came in to tell my that my baby had died. She shrugged her shoulders when she said it. We were rushed away on a day that they'd already told us they weren't busy. It was gross. My experience with my Baby Errol at 6 weeks was exponentially more gentle. When I feel comfortable, I'm going to write a letter and take some doula materials up there, to show them the importance of kindness and bedside manners during bereavement. I hate that so many mothers find themselves in this kind of experience when their babies die before 20 weeks.

That afternoon, I was able to see my OB doctor. He came in compassionately and sat with me, laying my options on the table: wait and let the miscarriage begin naturally, have a D&C, or take the induction medication at home.
My decision was based on past experiences. Mason had been gone over a week before I found out, and it was almost two weeks by the time I was induced. I couldn't bear to wait for my body to take it's course, as it was betraying me even in that moment. Secondly, I wanted to avoid the sadness and lack of closure I had with Baby Errol. I knew I had passed him. I saw him in a tiny sac, in my toilet, and I flushed my baby. I wanted to see, hold, and kiss my baby. A D&C would not allow for that. I chose the induction at home. 

This happened on a Tuesday, and we wanted to prepare and spend the time we had with her as well as the immediate time after without rushing, worrying over work or anything else. We chose Friday morning as a time to start the medicine, understanding I could take up to 24 hours of the medicine (cytotec) before a D&C would be the next step.
The days between gave us time to prepare for a "home birth". We bought little blankets, a new nightgown, a box to stain and carry her in. We chose a jasmine and wild orange oil blend for her scent memory. I took self portraits with her inside me. Ryan made arrangements for cremation at the funeral home. We prayed over the coming days. We named her. 

Mara was a character in the Bible, Ruth's mother in-law. Her name was Naomi until she changed it when her sons and husband died, declaring that the Lord had dealt bitterly with her. It felt appropriate that week. I prayed candidly, telling God that I was confused and bitter. Yet, I was so thankful. From the moment we had a positive pregnancy test, we referred to this baby as "Baby Sunny". She came when we moved away from the gray skies found the literal sunshine. We found the name Elidi, which means gift of the sun. Together, these names fit our girl perfectly.

Friday morning was spent quietly listening to music and crocheting two tiny blankets (one for her, one for us) from the one I started the day Ryan returned from deployment and we began trying to conceive. Ryan came home around noon, and the quiet labor began to pick up. I laid on a heating pad and sipped tea. The waiting was peaceful, the pain had a purpose. It was a centered and spiritual experience.

In the afternoon, I felt my water "break". I had no bleeding before this point. Things happened quickly afterward.

• 
  

On July 6th at 4:19 pm, our sweet baby was born to me in the bathroom, by the yellow bathtub.

That familiar silence was so loud.

• 
  

I caught her, called Ryan in, and rinsed her off gently. 

We took her in the kitchen, where we had flowers and candles and her blankets near her box.

We took pictures of her alone and with each of us. I heard myself keep repeating, "Oh, she's just so cute!" because she was really cute and I was just in awe. Her face looked to be smiling, her hands together, her legs folded. This was the first time any of my babies has been outside of me and still inside my home. The dogs stayed close by, curious and gentle. It's so special to me that it happened this way, truly a generous answer to prayer that I just wanted to hold my child.

It wasn't long after that when we tucked her into her blanket and the box we picked just for her, then took her to the funeral home.
In the car before we went inside, my precious husband blessed our baby. We're probably not "qualified" for this but nonetheless we felt the presence of Jesus in the front seat of my Kia. He dedicated Mara to the Lord, we cried, and carried her inside.

When we left I began bleeding heavily, through my pants into the car seat. Ryan rushed me home and the bleeding kept picking up. I wanted to seem okay physically, and we were both hungry from not eating all day. So I sent him to get supper. I started getting dizzy, wondering how much water I'd really had through the whole process.

He walked back in the door 20 minutes later with Chick-fil-A, which has been our "after baby" meal every time. I simultaneously walked back into the bathroom to change the chux pad I had been cutting to fit. The next thing I knew I was nearly fainting, sitting on the toilet with Ryan running towards me and yelling to keep me alert. I then drifted off, I couldn't see at all and I could only hear myself sobbing, overcome with what had happened hours earlier. I don't remember anything else- how I got up, cleaned up, or got to the couch where I had a wet washcloth on my head and was being fed and given water when I finally came to. Once I ate and drank a few more cups of water, I fell asleep and slept through the night. The next few days were a blur of crying, sleeping and watching mindless television.

The following Monday I went in for a follow up, but when I explained that I was still bleeding, my OB was concerned that the miscarriage wasn't complete. The ultrasound showed that some placenta tissue was left behind, and the next course of action was to take a "less intense" version of the induction medication, this was called Methergine. It was familiar to me because I had taken it in the shot form for retained placenta after Mase, before my D&C. I didn't remember anything about it because I had an epidural. The problem was, for THREE days, my pharmacy nor any pharmacy in town had it and needed to order it. When I finally started it, I realized that it was not less intense by any definition. 

I had every non-life threatening side effect, the worst being the back and abdomen pain. 

I writhed on the couch for three days. I have never felt that kind of pain before. I didn't sleep, couldn't eat, just cried and moaned while my uterus was being forcefully emptied. I was passing huge clots like the night she was born during the entire time. I passed the little placenta on day two. 
Also on the second day, before Ryan left for work (he wasn't able to miss class without being reset) I asked him to call the doctor and tell him I just wanted a D&C now. Helpless, he got on the floor beside me and held me. I'll always remember what he said that morning: "You have done the hardest thing you'll ever do, four times now. You've already survived something that doesn't make sense to survive. You can do this, you know you can." He said it, knowing that at this point, a D&C would not reverse or prevent the pain I would continue to feel from the medicine. It was already started and would continue even if I skipped the rest of the doses. There was no sense in getting the surgery. It would have not made it better, simply worse. Yet, he did not say that. He was being a doula to me, and gave encouragement instead of presenting the wall even I knew was there in my right mind. 

I finished the doses and the pain subsided with a little residual soreness. I finally stopped bleeding a few days ago.

At the end of that first week, our baby's urn had arrived. At the funeral home, Ryan transferred her ashes into the urn carefully as I watched. We brought her home and placed her on the mantle, next to her brother. I have matching urns for two of my babies now. 

I wanted to go to SC for my sister's wedding shower and planning this month, and the pain went away just in time. I even took a little detour on the way back home to spend a few nights in Helen, GA and be alone. Two weeks in, I had not yet grasped that my baby was gone. I was focused on physically trying to heal that I  blocked myself from grieving properly. It was a completely traumatic month for my body. My time alone was to force myself to understand and begin to grieve, and I'm not sure it even worked then, because the emotion and clarity is just starting to sink in.

The commotion has now gone away. The calls and cards and flowers come in the early days, and we are so thankful for the immediate answer of love and support to our hurt. We know we are cared for.
But it's always especially quiet when the hard days actually start. And a month later, as I begin to understand what's happened, it feels very lonely. Maybe even lonelier this time than any time before. I feel people have grown tired of this. I know I have. I wish my daughter were here, living inside me. I wish they were all here and this was a stupid mom blog about fun summer activities when you're pregnant with three more under four. 

That's not true, though. The truth is my baby died, again. I know its hard, what is there to say? Nothing. There never has been a script I could hand someone and, damn, aren't we all so exhausted of this happening? I know it takes energy to support a mom who has lost her baby, I've gotten so much of it over the past three years. Now I'm adjusting expectations of others and of myself so I can be gentle with us both. I'm in a place of fresh grief for the first time in two years, and I'm thankful for this "business break" I've been taking so it can be my sole focus. This is all so familiar and foreign at the same time, and I'm going to take my time navigating it. The start for me was writing Mara's story today, writing my story of my sweet fourth baby. Now I'll be reading it back to myself until it doesn't sound like someone else's anymore. 

"For our light and momentary troubles are achieving for us an eternal glory that far 

outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal."

2 Corinthians 4:17-18

In Defense of Shutting Up

It has been 8 months between my last post and this one. I've had a few reasons for not blogging- some of them intentional and some of them beyond my control. Either way, I feel so relieved to sit down and write about the things I've been reflecting on, even if it ends up being a word vomit.

Following Mason's due date, life became very overwhelming. Ryan and I had a few weeks in November to bond with each other and connect before he would deploy. Those weeks felt like hours and before we knew it, he was slipping his wedding ring off into my hand and joining formation to march out of the gym. I was suddenly in uncharted territory and it has taken me seven months to really get a good handle on navigating life and grief without my partner within tangible reach. I'll write more about that soon.
We watched people we love, people we consider to be reasonable, people we've come to expect some perspective from... come completely undone in the face of the election. That was exhausting- trying to avoid all politics and just care for our own hearts when many of the people we looked to to help cultivate a gentle atmosphere were caught up in those politics. I couldn't do anything but sit quietly and observe the chaos. This was the beginning of my writing break.

All three birthdays have passed for our babies. January 5th was our Baby Errol's, it came and went as quietly as he did. Mason turned one on May 19th. And Eden turned two Monday June 26th. I feel that the second year for Eden was harder than the first, but the timeline has been complicated as her second year was Errol and Mason's first.
Either way, this year was harder than the last. It's no secret that a miscarriage is societally seen as "less" than a full term neonatal death. There has been a stark contrast between the kind of support and love we received when we consider that we've lost three children. That's what they are to us. Our babies. And it felt like to some, they were not. That because we haven't shared Mason's face, he must not have one. That because we never even held a Baby Errol, he really wasn't here. And that is a shitty thing to feel. People have continued to tell us they always think of us and Eden. Conveniently excluded are our other two- whom Ryan and I call "the boys". Finding a way to build legacies for babies others like to pretend didn't exist is exhausting. Continuing on with life-long grief while outsiders would believe that there's a time limit is also exhausting.

It has also been a year that made the question "do you have any kids?" harder to answer than before. We don't know what to say anymore. If we say yes, then answer the questions that follow honestly... we usually walk away from some awful platitude that just hurts. We'll never deny our babies, but we've learned to skirt the topic with strangers and try to ease into it gently with new friends so they may understand first how we'd like to be treated after telling our story to them.

This blog kind of got out of control. Going viral after Eden's identity theft opened our lives to scrutiny that our hearts couldn't handle. I disabled comments of course, but emails kept coming. I was accused of killing my children, of getting pregnant on purpose to lose a child. Ugly things have been said in the face of our decision to be transparent with our marriage and with parenthood and with grief. I don't want my babies memories immediately associated with what happened to us, and I definitely don't want them associated with such awful accusations.
It is also hard to gather your thoughts with people watching (or reading). When you're vocal about your experience and something relevant to that experience or something you've said before (say a pregnancy announcement as an example), people look to you for your initial reactions so they may decide if you are gracious or bitter.
SO I felt I just needed to shut up for a while. The internet has brought us to some of the most supportive and loving friends, but it is not always a safe place for the grieving mother and father.

Then again, neither is everyday life.
I've grown so tired of being asked when we'll have another baby. HEY my husband is deployed so it won't be today. What if we don't want to have another baby?
The problem is, it makes people uncomfortable to call me a mom or Ryan a dad as long as we have no living children. It makes me question our parenthood myself. I feel invisible. I feel taunted.
"You can have mine!" No, I can't.
"I could choke them." Please, don't.
And so when I am in a room full of mothers, my anxiety manifests in the form of believing that I have nothing to offer to the conversation. If I do offer something, it might shut the conversation down or worse, I very well may walk away from it being told my offering was not welcome or relevant because I am not nor will I ever be like them.

This anxiety evolved in my mind... when I did want to sit down and write and share, I couldn't. I physically could not get the words out and I had begun to believe that it didn't matter anyway. I was paralyzed at the thought of being vulnerable and pouring my heart out for none of it to ultimately matter.

I have been given my circle though, my own mom group. I was able to begin to cultivate friendships with other moms- some of them also having walked through unspeakable loss- where instead of feeling contagious I've been asked to keep children overnight. Where I can speak freely as a mother and a woman and no one questions whether they might value what I have to say. They make me a spiritual mom of their children and that kind of friendship is worth more than gold. I think being quiet with the world to "find" those people was needed.

Another thing I've been able to do since I've taken this time off is become a certified doula in birth & bereavement. In December I had the thought that I should, but I told the Lord he would have to be louder if that were an avenue I needed to pursue. He would up yelling by February and so I registered with StillBirthday. I turned in my final tasks last week. I think it'll add a lot to my presence at bereavement births as a photographer and with that being such a big "why" for me... it just feels so good to have done this. I'll be overhauling my business in the next few months to focus more on births and doula services.
In 6 months, I had written a whole paragraph for a book. It was not coming easily and it felt forced. I was deleting everything. So I put that down at the same time I started my doula course. I feel like in the next few weeks I'll be able to pick it back up again as well.

Really, taking this time to be quiet has been so needed in my grief. Learning to be alone and recharge and care for my heart and mind is an important step in healing that I never expected. I had been self medicating with busy-ness and oversharing and so when I finally shut up and cleared my schedule to just be alone, it hurt. It was like coming down off a high. I didn't know what to do with myself. Many things I'd been keeping at arms length entered my soul and I broke. I had no where to look but upward and nothing outward to work on... that meant working inward.
So me and God have had it out these past few months. When our relationship was pretty and I was hashtag blessed, I never had to question Him. But in the wake of loss and confusion, I still didn't want to question or doubt. I spent so much time just "yes and amen"-ing even when I needed to fuss that I did not fully confront the questions and anger when they arose. I won't go into too many details, but the quietness and down time allowed for me to seek the face of the Savior and discover undeniable truths for my broken heart. While it was hard, I can still say it was good. It's important to work out the kinks in faith every once in a while or else, is it really faith?

All of that to say I'm back to writing and I'm glad. If none of it does ultimately matter to anyone else, it matters to me. It's a part of my healing. It's for me. Hopefully it points to the Lord in suffering. Hopefully it gives hope of abundantly blessed life after loss even without living children. Hopefully it inspires someone or just makes them feel something. If none of that happens though, it inspires me. I like to talk about this life and this grief and all the love I have for my babies.
I had to shut up for a while to understand why and who for. Because it matters to me. For me.

Should-Be Birthday

Today was my estimated due date. I am 40 full weeks not pregnant. 

Mason should have been born today. Or yesterday. Or last week, or tomorrow, or two weeks from now. I know babies always come on their due dates, right?

I know it shouldn't be a huge deal that today is today but my heart feels the heaviest it has since the last time I held his little body. It's almost like my body knows it, too. I am tired, achey, and irritable. My arms hurt- they feel so very empty. I didn't plan to remember today, but mamas just don't forget things like this.

I don't really have much to say- I am just so sad. But I did want to write a little about him for his day. 

This surprising boy. I didn't think it was even possible that I could be pregnant with him when I found out I was. Then, we truly believed he was a girl from the beginning. His pregnancy was so much like his sister's. 

I was sick and I could only enjoy a few foods. My middle was growing fast. I was feeling him move sometimes. And it felt good. He brought with him feelings of expectation and security. I was believing that we would bring a baby home this month. 

But then I was laying there on the table, trying to erase what I had seen out of my mind: a still heart. My baby was not moving on his own accord. And there was no longer life inside me. 

So I called my husband before I even sat up and I told him what I saw and he told me he'd be home soon. (Thank you Red Cross & U.S. Army for getting him home THAT night). 

Two days later on May 19th, I was induced. At 9:50 p.m. we were shocked when this little boy was born to us. He weighed only one ounce. He was 4 3/4 inches long. His fingernails had already reached his fingertips. His nose was his dad's. Ryan's only words were "Mason Gregory" and then he was blessed by the chaplain. I'll never be able to replicate the sounds I have made when I've held my children, realizing they had died.

We spent time with our son until the next morning. We got fingerprints and footprints. We held him close, and then after meeting with the geneticist, allowed him to be taken from us. We went home shortly after that where we were loved on by our friends and family with meals and cards and flowers and scripture and prayers. And somehow, we lived. Somehow, I'm still alive. Looking back on these moments it's such a wonder to me. How I can go on living when my children don't get to is just beyond me. It isn't fair. It IS more than I can handle. God has handed me more than I can bear. I am so thankful that He bears it for me. 

Today we'll be going to see the movie, "Trolls" because Mason's size was closer to the troll doll comparison on my fourteenth week of pregnancy than the canary comparison on my fifteenth. Again, the bird is always a symbol for me that my children are safe and he was winking at me before I even knew. 

We'll eat some spicy food- I'm thinking buffalo wings since that was his favorite flavor. 

We'll be picking up a quilt made by a sweet woman using his baby blankets. 

We'll light his candle and take out his pictures. And we will remember all the joy he brought us, even if he only stayed a little while.

I wish I were holding him today- a big fat baby that filled my arms. I wish I were singing "You Are My Sunshine" to him again. I wish I could feed him, rock him, and be up all night with his cries instead of the nightmares that remind me that I can't do any of this. 

Today should have been his birthday every year for a very long life. Instead it is another missed due date for me and another day to honor a baby that isn't here. I can't explain how much I miss him and can't wait to hold him again.

An Update and a Note on Disabling Comments

In the past few weeks my open letter to Kristin Keel has resurfaced and made the rounds again, opening my blog up to many questions about the situation. I wanted to share with those of you curious what has come of the whole ordeal since January.
We pushed pretty hard down many different avenues to have her and her husband punished for, at the very least, identity theft of our child. Since there was no record of gifts and money they received as a result of their fake child's death, it has been impossible. There are, unfortunately, no proven laws broken against us personally. Maybe one day we will have the energy to initiate a bill that would make sure that online identity theft of a deceased person is a crime. We don't have that energy right now.

We've done what we can. I wrote the truth and published it here and it made its way to the eyes of all the people who grieved for a child that didn't exist. It helped loss support groups kick Kristin out so that she could not also prey on their children. It gave a name to the face that has tried to keep scamming so many more people. I said my piece. So, really, I've done my part.
It has been a really hard 18 months and it's just time for us to try and regain some kind of normalcy. The anger and bitterness that Satan tried to plant using Kristin really have no room here in the grief we are trying to tend to. Ryan and I consciously stepped back from the drama in an effort to keep a hold of our sanity and we have decided that forgiveness is the only way to free us from the hurt she caused. And we are also praying genuinely for a change in the hearts of Kristin and Troy. We are super grateful for the kindness and love and support we have received from the whole new wave of strangers brought into our lives by this and that's what we have to focus on.

Thoughts on a Missed Due Date

Our second child was lost at five weeks.

We learned I was pregnant on New Years Day.

I tried to celebrate this baby, and I did with an early announcement and a "big sister" book for Eden. But the sight of the positive test was ominous for me. I told Ryan immediately, "he's a boy, and he isn't ours to keep either". We prayed that I was wrong, but I knew.

Four days later we found ourselves in the emergency room receiving the news I expected.

I was two days into the miscarriage when I was called by the CHERUBS president and informed that someone had stolen pictures of Eden to pass off as her own deceased fake baby. Enter the hell and drama that was my baby girl's identity theft... and exit the opportunity to truly grieve for the baby we were presently losing.
It wasn't until I was at the Hope Mommies Retreat the next month that I realized that I had not absorbed what had happened- I had not recognized that I lost another child until I saw only one name beside mine.

So when I came home I told Ryan I felt he needed a name, and a few days later he suggested "Errol". It means 'to wander', and it fit because that is what he did. By the time I knew he was here, he was on his way back Home. From then on our second child became known as Baby Errol. It got past me that Errol was also the Weasley's owl in Harry Potter, until my best friend reminded me and it comforted me as HP will always be my favorite story (I mean, who doesn't like HP?).

But I still did not fully grieve that loss even with giving him a name, because at the end of February I found myself pregnant with our third child. It happened so quickly and surprisingly that I just had to move forward and press into the good feelings that this pregnancy brought. When Mason also died at 15 weeks in May, Eden's birthday followed shortly after...

Baby Errol was almost ignored through it all (in true middle child fashion), until suddenly it was July and someone said the word "September" and my heart immediately dropped- I should have a newborn baby in September. On September 7th, to be exact. And that unexpected punch to the gut- "It'll be September soon," is when I really started to grieve that loss.

Today I am reflecting on what that grief looks like- it is so different from that which I carry for Eden and for Mason. I had no chance to get to know him. I am missing what might have been rather than what actually was. Does that make sense? The pain of early miscarriage is so ambiguous- so much possibility, just disappeared.
I have nothing for Errol. Not a footprint or a picture. His body is not in a plot or an urn.  The pregnancy test is in my drawer and that is all I have to show for his brief existence. When I miss my daughter I can hold her weighted bear. When I miss my son I can snuggle his blankie. I can grab things from their time with me and cling a little to the past. I can recall their personalities. I don't have things like this for Baby Errol. So missing Errol is purely missing the future. There's nothing left behind, just this gaping hole where this child I never knew should have been.

He's not less meaningful to us because of all this. He is my child. This baby came to us after we thought we could never even imagine having another. He made it real to me that I am not exempt from loss after loss- no free passes for anyone. It is just far more complicated to be intentional with so much unanswered grief.

The summer weekend for the Mara Hope Project sessions just passed. As he was helping me set up the studio, I told Ryan I really wanted a complete family portrait. He asked how we would include Errol and neither of us could find an answer. So we didn't participate this time. And that made me really sad. But it also rustled in me the desire to purposely honor his life as we approached his due date.

I felt lost and still do... but for this tiny little being and his tiny life, small and simple things seem appropriate.
We cuddled and loved on the little boy that would have been his best friend.
We went to the fair this week and Ryan won me a small owl, one that caught my eye just for Errol.
We went out this morning and brought home a plant to nurture.
I'll finally linger again in the room of unused baby supplies. Perhaps I'll even clean it.
I'll write my photography proposal for the charity interested.

And suddenly it'll be tomorrow, but I'm not sure I'll feel any less lost than I do today.
And that's okay. Two years ago last month we began praying for a child and now we have three in Heaven. It's a tough pill to swallow and one that I can admit I have a hard time accepting, as anyone would.

But oh, I bet this kid is just smiling at me. I know this all seems so trivial to those babies. The joke is on me, because every day is a happy one for them, even if it's a sad one for me. There's the only peace. I know he's glad, healthy, and whole and just waiting there for me with his (yes, or her) brother and sister.
So, happy due date to you, Baby Errol. Your Mama is missing all that should be today.

Manila Envelope

My last post was about my son who was meant for November but came to us much earlier. Today is his three month birthday.
He was the third baby we've lost. So we got the ticket nobody wants to get- the one where they screen us for everything that could be wrong.

We asked the geneticist to run every possible test on Mason and on us. He did. He ran every test and sent them off to the big lab. We waited a month and a half to get the results and I just knew that something was going to come out of them. It had to.


I was believing that Mason's purpose for dying would be that Ryan and I would get answers, would get some direction on how to prevent another loss. I was believing that something was definitely wrong somewhere or else we would not have had to say goodbye to all of our children. Mason, I thought, came to make a way for answers. If we hadn't lost him, there would have never been the open door to every test under the sun.

So while we waited for these results I was most impatient. I emailed my doctor every day. I knew she was checking every morning and the afternoon reply would come, "nothing yet".

All through this time, my inbox kept filling up with the same questions: Have you gotten the results back? Did you test for xyz? What did the doctor say? Any news yet?


When you're transparent about your life, pain and grief included, even people you aren't close with begin feeling entitled to you. It's not bad or wrong of them, they just begin to relate to you and they grow familiar with your life and feel as though your answers are their answers too. It isn't bad, but it is extra hard on you.

There was enough pressure from the expectations Ryan and I had for these tests. I quickly recognized that others were relying on these results too. Other people are banking on a happy ending for us and that was a lot of extra pressure even at the same time it was encouraging. The part that goes over the line though, was when people began assuming they knew the answers.


Listen, I know how it looks.
It looks like I can't produce a healthy baby.

I know what is being said behind my back.
Hell, sometimes it's even said to my face. I was told to get find someone else to carry a child for me.

I know that everyone is wondering what I did wrong.
Let me tell you, I have been wondering myself.

But I was careful. I got the green light from doctors before conceiving. I ate well and supplemented the protein I was missing out on. I limited my caffeine and I did follow every single healthy guideline because no one on earth wanted our children to have the best chance more than we did. And I had healthy, textbook pregnancies- one of them to term. But my pregnancies did not produce healthy babies. My babies died. I know of many unhealthy pregnancies that produce healthy, thriving babies. These things are out of our control! Still, you don't know the guilt and fear that's carried with a pregnancy after loss.

We knew we would eventually share the results with you all. I choose to be open about these things because its healing for me and it might be healing for someone else that I don't even know.
But we have not been ready to open ourselves up again to all of the speculation.
We've been grieving deeply. We've been trying to not remember how many weeks pregnant I would be. We have been packing away baby items. We have been surviving. That's what we've been doing for the past year since we arrived in WA. We are still very much grieving all three of our children, not just the most recent one, because time has no power over grief or the love that causes it.

When we got the results back, do you want to know one of the first things I said to Ryan? In the middle of the grief and confusion and the pain and while the concrete around our loss was still drying, I asked, "What will people say?"
And that's when we realized I needed to take a break from being so public.

I know everyone wanted answers, including us. I can understand the eagerness. And you have all been doing your very best to support us. We are supported. We are loved. And we are thankful.

But I also want everyone to understand that we need time to process things before letting others process them too. We are not obligated to share everything, and especially not before we are ready.

Instead of the questions concerning medical records, here are some helpful ones to ask in case you all find yourselves seeking to comfort newly grieving parents:

-How can I pray for you?

-Have you been eating?

-Do you have any errands that need running?

-Will you tell me about your child?

-Would you like me to sit with you?

-Would you like to get out for a while?

-Would you like to be alone?

I'm sorry for nagging. I just really want to set the tone for how we expect to be treated in light of this news that we are now ready to share.

We were on the way to the beach in S.C., the last leg of our visit home which was meant to be relaxing and fun. But, my phone rang and I saw the Tacoma number. It was my doctor.
Ryan turned the radio down but she was still very quiet when she said, "He was positively a little boy, and he was positively perfect. Everything came back normal."
We talked for a few more minutes and I could hear her crying with me. We made an appointment for when we came back to WA. and I hung up.

It made the end of our vacation a lot more sober than it already was. The day before was Eden's first birthday. One year after losing our first child, we are told that we just had really bad luck with all three of them.

So we came home and a few days later went into her office so that she could hand me a big yellow manila envelope of test results. It was heavy. "Lots of medical, cold terminology in there... you don't want to read it. It's just for future doctors' reference."
Sitting in the pharmacy I took it out and began to read it anyway. Pages and pages and pages with the words 'normal' and 'unremarkable' typed on them.


I sat there in disbelief and just cried and cried. I was so hurt. I am still hurt. I am still confused. I am still afraid.


My whole life I have been concerned with why things happen. I used to believe that everything had a reason. My world has been rocked by these kids. Everything I believed before has been challenged and altered. After Eden passed, I began to let go of asking why. After Errol passed, I touched it but quickly retreated. This time, I demanded that God make it known to me. And initially, because I had invested so much hope in the contents of that envelope, I thought Mason had died in vain.

I did not necessarily want to be told something was wrong with me or with Ryan or with our child, but I did want to know WHY. I kept opening that envelope for weeks, thinking maybe we missed something. I even went back in it today. It's the same. Same words. Same paper. Normal. Unremarkable.

I have to put this envelope away and put this energy into honoring my son. I'm beginning to think Mason came to make a way that I could tear down the "why" wall for good. That I could maybe one day toss reservations and guilt and shame and worry to pick up only the bare necessities: love and grief. I'm still working on that. But I think he finally broke me for good of the innate need to be given a reason.

I repeat it over and over in this blog and in my home and to other loss moms: there's no reason that our babies die, not a good enough one anyway (if you think you have one, I'm not interested in hearing it). I fell back into the trap of believing that everything had a reason. But Mason did not have a "purpose for dying" like I was foolishly believing he did, contrary to everything that I already knew.

There are a lot of reasons that our babies come to us, though. One of them because we are the only ones that can build legacies for people who were here for such a short time. He chose me. Thank God He chose me for them. They are mine and I am theirs and there's so much painful good in that. I will love them and do good things where they could have if they had lived.

Today is also the International Day of Hope for bereaved families. It is a day to share about our children and remind others that they are still very loved people, not just sad events in our lives. I did not create a prayer flag this year but I am spending so much time reflecting on what a miracle really is. My babies died, but they are still miracles. I asked for them and they were given to me. Ryan and I still being here and living an abundant life is a miracle. The promise of being a complete family again one day is the ultimate miracle. How amazing is the thought that I'll be as innocent as my children when I finally hold them again in front of the Father?

I wish I had answers for you all. I really do. It's been a long year that we are thankful you have supported and loved us through. I want a happy ending pretty ribbon tied around this story for you all as much almost as much as for myself. But life is messy. It's not fair and it's not pretty all the time. That doesn't make it any less miraculous.


I know that there are more questions after this, the most pressing one being what we do next.
We. Don't. Freakin'. Know.
Right now, we are recuperating. We are full of grief and my body is drained. We are so tired. So we are resting. And I am sealing this envelope and putting it in the safe.
Please don't recommend we grow our family by way of another pregnancy, or surrogacy (BTW, that's super rude- if you think I'm a dud, just say it behind my back), or adoption, or fostering. And when we are ready to grow our family, please don't discourage us from being brave enough to pursue a living child-whatever avenue we are led down.

We're praying for peace to sleep and patience to complete simple tasks and grace enough to get through every moment missing our babies. For now, we just ask that you encourage us to rest. And go to the throne on our behalf and intervene, send your vibes, give us thoughts... whatever it is you do. And remember who we are when you want to complain about your kids directly to us. And be patient when we tell you certain events are hard. And give us grace when we bail. And join us in letting go of the need to know why this happened.

An Open Letter to the Woman Using My Daughter's Pictures Online

Kristin Keel Of Minot;

I keep blinking to make sure this is not a nightmare. I have refused to believe that people like you and situations like this actually exist in the world. But I have to admit the truth to myself- you do. You are real. As real as my daughter is, though you have attempted to make her un-real. Shame on you.

I was lying on the couch and resting on Wednesday. I had spent all of Tuesday in an ER testing for a miscarriage and would be going back for a last test on Thursday to be sure that is what was happening. A miscarriage of pregnancy, that is. It was my first since loosing my daughter. I was emotionally drained and physically exhausted. Then Dawn called. I didn’t know what a CHERUBS coordinator could be calling me for, but I was eager to take the call and talk about the daughter that they had helped me prepare for and say goodbye to.

MY daughter, Eden Olivia Coker. We learned we were expecting her on October 15, 2014. We learned she was a girl in February 2015. She was diagnosed with a severe and fatal Bilateral Congenital Diaphragmatic Hernia in March 2015. I carried her to induction on June 25 2015 and birth on June 26 2015 at Fort Carson, Colorado. She was born at 10:40 am and died at 11:20 am. She took a few breaths, her last one in my husband’s arms. She never cried. She never opened her eyes. She saved every bit of her energy for those breaths. She went peacefully and quietly into the arms of Jesus. She smelled so good. And she looked like her father, her real father. If you'd like to know more about her actual birth story, you can click this. My little Cherub, that raised awareness to thousands of people about CDH. Over 300 people attended her viewing and saw her body in the casket. She was buried on July 2, 2015 in Sumter South Carolina. Her real Nana goes to visit her body there every day. She resides in Heaven with Jesus, her great-nana, and her cousins. She also resides in the air I breathe and the birds that visit and the faces of every other loss mama I have met on this journey. 

You know who’s face she isn’t in? Yours. Not at all, not one bit.

Dawn said, “I have some disturbing news...” and the rest was a blur. She cried with me and we sat in amazement at this development: someone in Minot, North Dakota had apparently faked a pregnancy and a stillbirth and was using Eden’s pictures to pass the baby in them off as their fake daughter, “Parker Ann Marie Keel”.

I hung up with Dawn when I became hysterical and I called my husband, my mother, and my photographer (by the way- Kahva Photography owns ALL of the rights to all of the images you printed and many of the photographs in this blog post). They joined me in tears. I sobbed so hard- how could the world just keep heaping all this crap on me? Who would do such a thing?

Not wanting to be hasty, Ryan and I waited and let this sink in before we decided we would be taking whatever actions possible against you. So I told Dawn that I would like to know who you are. She sent me screenshots of my baby’s face in your life. Printed and put up on your wall, printed and taken to sit in a Santa’s lap at Christmas (or photoshopped?). Google images for your ultrasound picture and another bad edit job. The memory of my very real Eden Olivia defiled to be fake “Parker”. A nursery prepared and posted on your mother’s facebook. My thoughts went to your poor mother, Kristin. Has she been grieving a granddaughter that isn’t even hers, or does she help you with this façade?

I don’t know if Troy is in on your game. But what made my stomach twist in knots was the video Troy posted of you two sprinting out to a “grave” to make snow angels, smiling and laughing and jumping around. The cherub with this name “Parker” engraved onto it. The wreath made to look like a turkey.  Nothing but toothy grins plastered all over Facebook. Lies. All of the sickest types of lies.

Your smiles are wicked. And my heart breaks for every person who believed this charade.

It’s been suggested that you could have had many different motives for using my daughter’s pictures… for stealing the identity of a deceased baby. Maybe you did loose a child and could not get any pictures for whatever reason… I don’t believe you lost a child. Because if you had, you couldn’t have done such a thing. I know too many people living after they have lost their babies to believe that after going through such pain, you would be able to make a mockery of it by using another parent’s pictures of their child.

I dug, but I did not have to dig far. The people around you had been keeping tabs on your lie ever since it began.

After adding up more information and learning about you, your past plagued with fraud, theft, and many other offenses to include suspected poisoning and taking advantage of those with disabilities… I can say that I know in my heart that you were never pregnant and there was never a baby.

I’ve heard multiple versions of your story- showing up to the ER, sending your husband home for clean clothes, birthing this baby and then leaving the hospital, walking down the street before he could even return to pick you up, then telling him that a hospital employee took your baby’s body from you, dug up her own son’s grave and put your baby in with him (all while neither one of you calls the cops) is outrageous enough….  Then I’ve heard the one where you claim the baby’s body was donated to science… Then I’ve heard there is a grave with a baby in it and then I’ve heard there is a grave with a casket of toys in it, then I’ve heard there is no actual grave. None of it adds up. Nope, you are a liar and I don’t believe there ever was a baby.

Other offerings of motives came. Maybe you were never pregnant but needed Troy to marry you and locked him in with pregnancy and solidified it with loss? Maybe you were both looking for money so you told all of your town your situation and started a Caring Bridge campaign to exploit the hearts of people around you over the saddest situation on earth. All of these possible reasons sounding like plots from a Lifetime movie.

Then, when asked in a personal message from me, all Troy could say was “we immediately questioned the amount of hair”(yet you kept using the pictures?)… and “the pictures were given to us by a local nonprofit”… so when I spoke with the local NILMDTS photographer and the only photographer the hospital calls in the case of stillbirth and infant mortality and she told me she’d never taken the pictures I showed her… well. You know. But I was told by Troy “there’s no need for you to be involved anymore, as I’m sure my wife has already messaged you, we now know we were given the wrong pictures.”

No, Kristin (and I never did receive a message from you). You weren’t given the wrong pictures. You took the pictures. Not only that, but you sought out the story behind the pictures and you made that true story your tall tale. You took advantage of the CHERUBS community, of your community, of every babylost parent that ever reached out to you in solidarity, and of my sweet, precious, innocent girl.

You are a morally bankrupt woman and if your husband was aware, he is just as bad. There is all the need for me to be involved. I will stay involved.

Do you know what you’ve done to me? To my husband?

In the middle of loosing our second child, your actions have broken our hearts. And for what?

We have never done anything to you. I had to make sure I haven’t lost my own mind… that this all really happened to us and not you. I have had to check my own crazy a few times this week.

Did you ever stop to think that there was a real person behind the story you have been scheming? That a very real little girl existed for those photographs? That her true mother and father have spent all this time in agony living without her and then they have to see you playing pretend with her? I’m sure you didn’t stop to think of the people Eden belongs to- her parents, her family, our friends, and every person her little life touched.

But you have messed with the wrong mama.

I prayed so hard that the Lord would show us what to do about this. So he sent these sources- people that know you and the havoc you leave in your wake. We are so grateful for them for encouraging us to do what we feel led to do, for them telling us exactly what type of person you are.

If the only thing I can nail you on is pain and suffering, I won’t. I don’t want your money. There’s no amount of money that could make what you’ve done right. But I won’t stop.  I will read every law every concerning identity theft. I want you put away. I want you unable to reproduce. If you can kill off a fake child, what would you do with a real child?

Some might say that taking legal action is going too far, that it is tainting my daughter’s memory. I say that I must do all I can to protect it fiercely. Her memory is all I have left! I’m not sorry for pursuing those avenues.

Some might also say that exposing your name publicly is going to far, that it is ruining your reputation. I say that you did that to yourself when you decided to do this to us. I’m not sorry for putting you out there or any embarrassment this causes you. When I finish writing this, I'm going to snitch everywhere. 

There are some things I am sorry for. I am so sorry that my beautiful daughter isn’t here living and breathing and growing. I am sorry that she died. It’s not fair.

I’m sorry that any babies die. And I’m sorry that people like you exist to exploit how unbearable and unthinkable that experience is.

I’m very sorry for your family and friends and coworkers, the ones who unknowingly ate your crow and mourned your fake daughter in very real ways. They do not deserve this any more than I do.

You are a sick, despicable human being. Really. I mean that. You owe my baby girl an apology.  You owe Ryan, and I (her actual parents) an apology. You owe my family and friends an apology. You owe your family and friends an apology.

And I hope that you get some mental help. That’s what you owe yourself.

I will choose forgiveness. Not today, Lord knows it. I’m not ready.

I have accepted that I will probably never receive an apology from you, but I know that unless I forgive you, your awful actions will only eat me alive. They will consume parts of me that exist solely to honor my Eden girl. And I will not allow that.

Her life was too damn beautiful for me to allow her death to be hijacked by you. She raised so much awareness about CDH and child loss, and she even raised a little awareness about that as “Parker”, but that isn’t her name. Her name is Eden and she was not a baby doll or the play-thing you tried to make her into. She lived, she was real, and she was OURS.

   

Anyone who attempts to water down her lasting impact in the world by claiming her as his or her own will receive the full wrath of our everlasting love for her.

Eden’s Mama,

Megan Coker



**UPDATE**
THANK YOU all for sharing this post and making sure it gets out there. I will not stop until I'm sure she is kept from being able to do this to another family, and I appreciate you joining me in that quest.

Please also note that I am extending forgiveness as well as I can. This is a very hard situation that Ryan and I have prayed over and we just need time to work through these very human feelings. Thanks for the encouragement. However, we will never "forget" what she has done. And we don't believe that forgiveness requires forgetting under any definition of grace. We will remember. 

I initially turned all of Eden's album to "private", then to "friends only". But after thinking about it, I decided that I would not let one crazy stop me from sharing Eden's story with the world. I will not let fear win, because Eden still has a purpose and raises so much awareness that would be stifled if I just hid it all away. I encourage you all to be vigilant about who can see your baby's pictures, but I also urge you not to let these twisted few individuals have the last word. 
Please, please do not drag family, exes, or employers into this. It's hard enough to learn you've been duped or used, and it's even harder when all these strangers are confronting you about it. Also, I knew there would be a select few who would stand by this couple and their story, and that is fine. I don't want to believe people can be so deceptive and sick either. Let those people be.


One extra sassy thing:
In the United States, there are approximately four home burglaries per minute (that's one every 15 seconds). Does that stop you from living in a house, apartment, dorm, whatever you live in? No? Oh, because you still like shelter and a place to put your things, rest your head, and be with people you love. I see. It definitely wouldn't be your fault if someone broke into your home and took something of yours.

Then why would the remote possibility of a crazy person stealing my kid's pictures stop me from sharing her and her story with anyone that would look or listen? It wouldn't. Because she is worth sharing and I can't begin to imagine the number of people's lives she touched that wouldn't have been touched if we kept her to ourselves.

Please stop saying "what you're going through right now is exactly the reason why I don't post my kid's pictures online." It makes you sound paranoid and ridiculous, and it also places blame on me for what this woman has done.